Genetic Privacy
Illinois Genetic Information Privacy Act
IL GIPA
Illinois · 1998 (DTC provisions added 2019)
Regulates direct-to-consumer genetic testing companies and/or genetic data generally — typically requiring express consent before collecting, using, or disclosing genetic data, and consent (or destruction) requirements for biological samples. BIPA-like private right of action: $2,500 (negligent) / $15,000 (intentional/reckless) per violation.
410 Ill. Comp. Stat. 513, as amended 2019Read statute →
This is a general reference, not legal advice or a determination that this law applies to your specific business. Run the full questionnaire to check against your actual revenue, data volume, and data types.